Ava is a feisty little 6 year old who was diagnosed with NF1 back in 2009, when she was just 6 months old. Since her initial diagnosis, Ava has persevered through a tumor wrapped around her C1 and C2 nerves in her upper spinal cord, a tumor in her spine, a plexiform neurofibroma underneath her scalp which extends throughout her neck and clavicle and also an optic glioma in her right eye. It's a mouthful just reading and writing it, so I can't even imagine what life is like living with all these challenges.
Despite these challenges, Ava really is a feisty little one and has continued to fight for a normal life and refuses to be seen or treated as different from other children! Ava is part of a competitive swimming team and has been swimming since she was 4! And she's done so well, that she's participating in a big championship swim meet! It's very exciting and I'm hoping that she enjoys the wonderful event this weekend!
Ava also has the loving support of an amazing family! Her parents Andrew and Dawn have provided her loving care and support through numerous MRIs, tons and tons of doctor and specialist visits and have built a great team of doctors to keep an eye on Ava and her health. She also has a loving older brother in 9 year old Reef. Reef is also a competitive swimmer and will be swimming and supporting his younger sister this weekend!
The Lowell family is amazing and Ava's courage is so motivating! I'm really glad that my support and fundraising will help to support this family! I can't thank CTF enough for giving me the opportunity to pair with Ava, my NF Hero! I hope you'll consider donating to my fundraising cause for Ava! Every little bit helps!
http://ctf.kintera.org/nfeironmanflorida2015/daizbiz
To learn more about Ava, you can also checkout her Facebook page, Ava's Army!!!
https://www.facebook.com/AvasArmy
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